James’s Blog: The Love and Pain of Starting a New School.

James’s Blog: The Love and Pain of Starting a New School.

So this week Parker started secondary school. I’ve been anxious about this moment for a while, not because I’m having trouble adapting to my children getting older but because – as long time readers of this blog will know – Parker is autistic. Covid-19 has thrown the normal school transition process out of the window, and if any of our children needed the chance to get acquainted with a new school, it was Parker. On the plus side, Covid restrictions mean that he’ll probably spend all his time with the same people in the same classroom. That’s a plus.

As it happens, day one went well. That helps a lot, and day two is a lot easier with that success behind us, but there’s still a way to go before both dad and child feel confident and comfortable with this new era.

Obviously, he’s the one facing the big changes and the new situation, but I’m anxious about his anxiety. I’m the the parent in charge of the school run, so the responsibility for managing his meltdowns falls on me. I’m not good at it. Ruth is so much better at this kind of thing. She’s much better at parenting generally – and coping with stress.

Part of the problem is my that own autistic tendencies don’t help. My experiences allow me to empathise with Parker and his struggles, as the things that cause him stress are the same kind of things that cause me stress, but in reality it just means that I can see the trouble coming. It doesn’t mean I can do anything about it, or even help Parker navigate it.

I can look back on my own childhood with the wisdom of age, and I can see how I worried about things needlessly, and how I could have much better managed the things that I did need to worry about. But have you ever tried to use your wisdom to override a child’s experience in the moment? It doesn’t often work, so I mostly just get to experience his stress without having the having the power to influence it. His stress becomes my stress, and then we’re both just stressed.

It’s the universe’s cruelest joke, to make you care for another but unable to live their life for them – to have to suffer vicariously. Love unlocks new ways of pain. It’s one thing to suffer yourself, to suffer as a result of your own choices. It’s another thing to see someone you care about suffer, to share their pain, and to know that they don’t have to suffer. If they were just able to see the world the way you see it for a moment…but instead you’re both left with the suffering.

But that’s how it’s supposed to work, loving your children and carrying their burdens even though it doesn’t really benefit you at all. That’s the example that we’ve been set. It blows my mind that God had a choice, and that this is what He chose for Himself.

James’s Blog: World Book Day.

James’s Blog:  World Book Day.

Today is World Book Day at school. Imogen is dressing up as a pirate from the Captain Flynn books and Xanthe is dressing up as a character from Ratburger. I don’t know the character’s name – I haven’t read the book. We’ve planned for Parker to go as Robin Hood. He’s recently enjoyed the book, and has been prepared for it for a couple of weeks. He’s seemed almost excited about it at times. Granddad has repaired his bow and made him a couple of (harmless) arrows from bamboo. I bought him some camouflage trousers especially for the costume, and we’ve cobbled together a pretty good outfit from our dressing-up box.

I like non-school uniform days, but I don’t like themed dressing-up days, for a couple of reasons. It’s partly because it either costs us energy or money, neither of which we have in abundance these days, but it’s mostly because we have a son with autism. He’s fine with non-school uniform days, but there’s something about the themed ones that set him off. Sure enough, this morning is no different.

Despite having plenty of advance warning and a pretty good Robin Hood costume, he’s still in his pants at 8.05. He won’t put anything on. What do you want to wear, Parker? “Nothing!” he says. He doesn’t want to wear his costume. He doesn’t want to wear non-school uniform. He doesn’t want to wear school uniform. He’s angry and difficult, throwing aggressive insults at everyone in the house. Normally this would cause a full-on sibling riot, but Xanthe and Imogen (to their eternal credit) have realised that this is Serious Business and are tying to help. Unfortunately, their best efforts sometimes make things worse.

“If you don’t know what you want to wear, I’ll choose something for you,” I say. I pick out some jeans and a shirt. I dress him. He complains, but doesn’t resist. I relax and go and clean-up the kitchen. I tell Imogen it’s time to leave, and put her socks on for her. Xanthe has already left. Then I see a pair of jeans and a crumpled shirt at the top of the stairs. A scrawny figure in underpants runs past. I shouldn’t have been surprised.

I try a different tactic. I take the underwear-clad Parker into the bathroom and we sort out his teeth and hair before going back to the bedroom. I am, unbelievably, still calm. I tell Parker that it’s time to go. This has the desired affect. I have, through bitter experience, worked out that the fear of being late often steamrolls over the top of his other fears. We negotiate an outfit through trial and error (“What about this top?” “NOOO! Anything but that one!” “This one then.”)

Imogen is ready, and behaving like the perfect child. Parker is now dressed, but dawdling on the issue of putting on a coat. We’re finally outside, but we have to pause for a few minutes while Parker tries to break back into the house.

Then we’re on our way. I am already mentally chalking this one up as a victory. Once we’re underway things often calm down, and by the time we arrive at school he’s usually fine. He’s still angry though, and saying all kinds of nonsense to his younger sister. Every now and then she appeals to me, but mostly she ignores him. “Parker’s only saying that because he’s angry. He’ll regret it later,” she says to me, with a wisdom beyond her five years.

We get to school, but Parker hasn’t calmed down.

“I really hate stupid World Book Day,” he says, through tears, as we enter the school grounds.

“So do I, Parker,” I reply.

My plan is to escort Parker to the door, send him in, and then walk Imogen round to her class, taking that opportunity to commend her for her stellar behaviour this morning. But Parker is in no mood to make things easy. We’re at his door but he won’t go in. I take him to one side, and threaten him with the loss of screen time over the weekend, but I regret it as soon as I say it. It makes things worse and he bursts into tears. It was a schoolboy error. When he’s like this, threats don’t work. I take it back and restore his screen privilege as only a parent can do. He calms down almost instantly, but he still won’t go in.

So the three of us walk round to Imogen’s door. “You’ve been a really good girl this morning, Imogen,” I say. “Thank you.” She kisses me and goes into the classroom. I take Parker back round, but he still won’t go in.

“I’ll walk you in,” I say.

This is the Big Play, the Silver Bullet, the Nuclear Option. For Parker, there’s no greater embarrassment than a parent actually being in the school building (which makes it awkward for his mum, who teaches at the school). This always sends him scuttling inside, but not today. It’s the first time it’s failed me. Instead he’s physically trying to restrain me from entering the building.

“Just let me stop crying,” he says. This is a fair request, so we stand to one side and I try to think of ways to cheer him up. I’ve got nothing.

Then Mrs Wheeler, his class’s TA comes out. She’s dressed as a wizard or something.

“What’s wrong, Parker?” she says. Parker says nothing.

“He doesn’t like World Book Day,” I say.

“But you like books normally, don’t you?” she says.

Parker shakes his head. A lie.

“Would you like to come and help me?” she says. “I have a few jobs I need to do before school starts.”

Parker nods. Just like that, she takes him into the building, arm round his shoulders.

She’s dressed as a wizard or something, but at that moment, as far as I’m concerned, she’s an angel.

I know what happens next. Parker will be fine now. When I collect him later he’ll be cheerful and talkative all the way home. I walk back to our house, thinking about how to reward Imogen for her maturity and grace this morning. I got Parker to school, and nothing was broken. Definitely a success, but for a weary and sensitive soul like me, successes often feel like defeats. But that’s just parenting, isn’t it? The rules are always changing, but you do you best, don’t you?

I think I’ll buy Imogen a book.

James’s Blog: My Family and Other Disorders.

James’s Blog:  My Family and Other Disorders.

In this past week our son Parker has been diagnosed with Asperger’s, except it’s not called Asperger’s any more. It’s called Autistic Spectrum Disorder (ASD), except it won’t be called that for long. They’re changing it to Autistic Spectrum Condition (ASC) because, I assume, that Conditions are less offensive than Disorders. Read more

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